Our mission
Our mission Homepage / en / About us / Our mission Share Fondazione Telethon is an Italian non-profit organization committed to advancing research on rare and complex genetic diseases.
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We choose to back research into rare diseases. It’s what makes us unique.
A collective heritage
Every year, the general public, enterprises, the media and institutions join forces with Telethon to invest time and resources in this enormous collective enterprise.
A track record of excellence
- 741 Milions invested
- 1.916 Researchers
- 3.118 Funded projects
Our Governance
Fondazione Telethon operates through a transparent and well-structured governance system designed to ensure accountability and effectiveness in pursuing its mission.
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Our impact
Fondazione Telethon transforms research excellence into measurable outcomes for people affected by rare genetic diseases.
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Official statements
All the relevant issues on which Fondazione Telethon has expressed its position and the relevant documents.
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Q&A
Some questions about how we fund research projects for genetic diseases and how we spend donors’ money.
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The Telethon Scientific Convention
The Scientific Convention reunites all researchers supported by Fondazione Telethon, conducting research in the field of rare genetic diseases.
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Code of Ethics
Fondazione Telethon has adopted an organisation, management and control model pursuant to Italian Legislative Decree 231/2001 (“model 231”).
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